MTM-CNM Family Connection
  • Home
  • About
    • About MTM/CNM
    • About Us
    • Contact
    • Newsletters
    • Traveling Turtle
  • Family Conference
    • 2019
    • Previous Conferences >
      • 2017
      • 2015
      • 2013
      • 2011
      • 2009
  • Resources
  • Research
    • Research Studies
    • Drug Approval Overview
    • Selected Publications
  • Fundraising
  • Blog


Our Blog

Dynacure appoints its Management Team and members of the Board of Directors

3/9/2017

0 Comments

 
Picture
We are pleased to share this news from Dynacure, a new biotech company developing a novel treatment approach for Centronuclear Myopathies: http://www.dynacure.fr/news/dynacure-appoints-its-management-team-and-members-of-the-board-of-directors/

At our 2015 MTM-CNM Family Conference in Chicago, Dr. Johann Bohm from IGBMC in Strasbourg presented some of the early scientific work from Dr. Jocelyn Laporte’s lab (supported by a research grant from the Myotubular Trust) which has led to the creation of Dynacure in 2016.  Dr. Belinda Cowling also presented on this topic at the 2016 European Family Conference in Germany (organized by ZNM-Zusammen Stark and Myotubular Trust).  For a short summary of the theory behind Dynacure, please check out the article by Dr. Cowling on page 3 of this newsletter from ZNM-Zusammen Stark.
​
We are grateful for Dynacure joining as a sponsor of our 2017 MTM-CNM Family Conference, and we look forward to hearing more from them this July in Nashville!

0 Comments



Leave a Reply.

    MTM-CNM Family Connection's Blog

    Sharing information, resources, updates, and thoughts on various topics of interest to the MTM-CNM community.

    Archives

    July 2020
    November 2019
    October 2019
    July 2019
    June 2019
    May 2019
    February 2019
    January 2019
    November 2018
    October 2018
    July 2017
    March 2017
    November 2016
    October 2016

    Categories

    All
    Patient Advocacy
    Patient Care
    RARE Disease Community
    Research News

    RSS Feed

Picture
Copyright 2014-2019 MTM-CNM Family Connection, Inc 
Admin
  • Home
  • About
    • About MTM/CNM
    • About Us
    • Contact
    • Newsletters
    • Traveling Turtle
  • Family Conference
    • 2019
    • Previous Conferences >
      • 2017
      • 2015
      • 2013
      • 2011
      • 2009
  • Resources
  • Research
    • Research Studies
    • Drug Approval Overview
    • Selected Publications
  • Fundraising
  • Blog