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Our Blog

Top Tweets for October

11/1/2016

1 Comment

 
Here are the top tidbits and tweets from MTM-CNM Family Connection for the month.  Thanks for staying connected!

Congrats to team @willcuremtm raising $$ for research by running #ChicagoMarathon! Nothing can stop a determined #mtmcnmfamily!

— MTM-CNM Connection (@MTMCNMFamily) October 9, 2016

What exactly is Myotubular/Centronuclear Myopathy? Here are some smart people to tell you about it: https://t.co/nC3iF7ND4W

— MTM-CNM Connection (@MTMCNMFamily) October 3, 2016

Conference 2013 memory: Parade of Hats! Love these crazy kids. #mtmcnmfamily pic.twitter.com/Mz9rzYax7m

— MTM-CNM Connection (@MTMCNMFamily) October 19, 2016

Enjoying #worldseries? Root for athletes w/ MTM/CNM who play ball w/ @LLBChallenger! This & more resources at https://t.co/3HkFkXm105 pic.twitter.com/P7VqKqeymU

— MTM-CNM Connection (@MTMCNMFamily) October 27, 2016

The water can be rough. Keep paddling. #mtmcnmfamily pic.twitter.com/x1ityEVNVY

— MTM-CNM Connection (@MTMCNMFamily) October 28, 2016

Myo, we need you now more than ever! #voteformyo #travelingturtle #mtmcnmfamily https://t.co/e2p0CuWHwd pic.twitter.com/2xm9rxQpGX

— MTM-CNM Connection (@MTMCNMFamily) October 30, 2016

#genetherapy is not like other drugs. FDA's Janet Woodcock, MD discusses technical challenges w/@raredr https://t.co/mFIXxLZE3V pic.twitter.com/kSxKPpnHcL

— MTM-CNM Connection (@MTMCNMFamily) October 26, 2016

Updated Q&A on XLMTM #genetherapy development from Audentes, now available on our research page https://t.co/T3VbbRuvhr #INCEPTUS #ASPIRO

— MTM-CNM Connection (@MTMCNMFamily) October 13, 2016

Get smart! Check out our list of scientific papers about MTM/CNM, available to read online: https://t.co/73V2J30dgr #knowledgeispower

— MTM-CNM Connection (@MTMCNMFamily) October 7, 2016

Donations go to the #mtmcnmfamily Conference. We take no salary, minimal overhead, & pay our own personal expenses. https://t.co/xP8Ljw7MMa

— MTM-CNM Connection (@MTMCNMFamily) October 16, 2016

Check out our most recent newsletter about the 2017 MTM-CNM Family Conference! https://t.co/yFjY4QrMsc pic.twitter.com/zf44aPicES

— MTM-CNM Connection (@MTMCNMFamily) October 31, 2016

Today only! 25% off all MTM-CNM "Brave" merch w/code BLOWOUTSALE https://t.co/z8B3y6yzpD Support #mtmcnmfamily

— MTM-CNM Connection (@MTMCNMFamily) October 10, 2016

Who is excited to see their #mtmcnmfamily in Nashville July 2017? We are! https://t.co/Rr2u0Y5jnQ

— MTM-CNM Connection (@MTMCNMFamily) October 10, 2016

Connections matter. #mtmcnmfamily Donate at https://t.co/k2hFGDh6EW pic.twitter.com/ZmeeJ7grdV

— MTM-CNM Connection (@MTMCNMFamily) October 31, 2016

Tears of joy, tears of sadness. Such a privilege to be "on the road" with so many amazing people. https://t.co/FIT0PNve3f

— MTM-CNM Connection (@MTMCNMFamily) October 21, 2016

Resources for & from #mtmcnmfamily: https://t.co/UD1OnC3kd3 Let us know if you have a resource to share!

— MTM-CNM Connection (@MTMCNMFamily) October 17, 2016

Wow, what a bowl of spaghetti! And just one little point mutation somewhere in there can be responsible for #RareDisease like MTM/CNM. https://t.co/o7vqeMGNah

— MTM-CNM Connection (@MTMCNMFamily) October 31, 2016

What an easy way to support a great cause! Help make our #mtmcnmfamily conference a reality just by shopping! https://t.co/6gUTWxgEfn

— MTM-CNM Connection (@MTMCNMFamily) October 12, 2016

2017 @MDA_Advocacy Conference, Apr 23-25 in D.C., great opportunity to make the voices of #mtmcnmfamily heard! https://t.co/XdLXoITxWH

— MTM-CNM Connection (@MTMCNMFamily) October 22, 2016

NY-area families, check this out: https://t.co/p5cfGyioak https://t.co/Nw9dUpxQBj

— MTM-CNM Connection (@MTMCNMFamily) October 4, 2016
1 Comment
Ray Hopkins link
7/11/2022 09:03:59 pm

Lovely bblog you have

Reply



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