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Rare Disease Day is February 28, 2017!

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  Created by EURORDIS in 2008, Rare Disease Day seeks to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Help us celebrate this special day and in particular raise awareness of our family of rare diseases, Myotubular and Centronuclear Myopathy!  Our community grows largely through word of mouth, so the more this is shared, the more people we can help!

Use the photos below on your social media (Facebook, Twitter, Instagram, etc) and help spread the word!

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Option 1: Generic MTM-CNM Purple Ribbon, if you would rather not add a personal photo.
Right-click to save the image to your computer.

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Option 2: Customize it, use your favorite photo editing software to add a personal photo inside the heart cutout.  (If you need help doing this, just send your photo to info@mtm-cnm.org and we can do it for you!)  Right-click to save the image to your computer.

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Customized example - a closeup "headshot" of one or two people will work best.

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Copyright 2014-2022 MTM-CNM Family Connection, Inc 
Admin
  • Home
  • About
    • About MTM/CNM
    • About Us
    • Contact
    • Newsletters
    • Traveling Turtle
  • Family Conference
    • 2019
    • Previous Conferences >
      • 2017
      • 2015
      • 2013
      • 2011
      • 2009
  • Resources
  • Research
    • Research Studies
    • Drug Approval Overview
    • Selected Publications
  • Fundraising
  • Blog