Rare Disease Day is February 28, 2017!
Created by EURORDIS in 2008, Rare Disease Day seeks to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Help us celebrate this special day and in particular raise awareness of our family of rare diseases, Myotubular and Centronuclear Myopathy! Our community grows largely through word of mouth, so the more this is shared, the more people we can help!
Use the photos below on your social media (Facebook, Twitter, Instagram, etc) and help spread the word!
Help us celebrate this special day and in particular raise awareness of our family of rare diseases, Myotubular and Centronuclear Myopathy! Our community grows largely through word of mouth, so the more this is shared, the more people we can help!
Use the photos below on your social media (Facebook, Twitter, Instagram, etc) and help spread the word!