2023 Webinars
April 22, 2023: Community Conversations: Liver Issues in MTM & CNM. Watch on YouTube.
Following this webinar, the MTM-CNM Liver Collaborative Working Group developed a "one-pager" document that summarizes the current understanding of "Liver Considerations for Myotubular & Centronuclear Myopathy". It is recommend to share this document with your/your child's doctors as part of ongoing care-related discussions.
Click the document image to download a pdf. |
February 11, 2023: Community Conversations: Astellas Gene Therapies share an update on AT132 Gene Therapy for X-Linked Myotubular Myopathy. Watch on YouTube.
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Astellas Gene Therapies provided written responses to questions that were asked during the webinar but were not able to be responded to live due to time. The Q & A file can be found here:
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2021 Webinars
May 22, 2021: Community Conversations: Patient Engagement & Advocacy in Drug & Therapy Development. Watch on YouTube.
2020 Webinars
July 13, 2020: Community Conversations: Tamoxifen for MTM. Watch on YouTube.
June 29, 2020: Community Conversations: Dynacure. Watch on YouTube.
