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6/4/2016

Some advice from this group of patient organizations on sharing your personal data and signing up to databases and registries.

shared_family_communication_re_data.pdf
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  • Home
  • About
    • About MTM/CNM
    • About Us
    • Contact
    • Newsletters
    • Traveling Turtle
  • Family Conference
    • 2019
    • Previous Conferences >
      • 2017
      • 2015
      • 2013
      • 2011
      • 2009
  • Resources
    • Community Resources
    • Webinars
  • Research
    • Research Studies
    • Drug Approval Overview
    • Selected Publications
  • Fundraising
  • Blog