The third MTM-CNM Family Conference was held in Bloomington, MN in July 2013
We found our Utopia this weekend in a Best Western Plus in Bloomington, Minnesota at an MTM-CNM Family Conference.
On July 26-28, 2013, our "family" gathered in Minnesota for the 3rd MTM-CNM Family Conference. What a time we had! These videos, photos, and quotes give a little glimpse of what this life-changing weekend was like for the 80 family members and 30 professionals in attendance . Be sure to click on the program below to read more details about the 2013 Conference, including information on speakers & presentations and family bios.
It’s hard to describe how important being at the myotubular myopathy conference has been for us and all the other families here this weekend. Sure, there was lots of fascinating and groundbreaking medical research presented to the group as part of the rather remarkable progress that has been made towards a treatment for x-linked MTM. But most importantly for us, being at the conference was about connecting with, sharing, and learning from other families of kids born with MTM.
Check out more videos on our YouTube page!
Andy is having so much fun at the MTM conference that he says 'no it's not a conference it is a PARTY!'