2023
July 15, 2023: New Liver Questions in the MTM-CNM Registry
April 19, 2023: In Memory of Reid
April 6, 2023: Register for Liver Webinar
February 7, 2023: AGT Webinar, Family Fundraising, Treasured Kids Foundation, Clinical Trials and the Patient Voice
2021
November 18, 2021: For Will
October 14, 2021: Registration for Dynacure Webinar
July 26, 2021: Externally-Led PFDD Registration
June 25, 2021: PFDD Preparations
June 2, 2021: Save the Date: Externally-Led PFDD
May 20, 2021: Patient Engagement & Advocacy in Drug & Therapy Development
2020
December 25, 2020: Christmas Comfort and Joy
November 23, 2020: MTM-CNM Family and Friendsgiving
July 31, 2020: EveryLife Survey and Scholarship; Dynacure News; Dowling Replay
July 11, 2020: Dynacure Replay, Dowling Reminder, EveryLife Survey
July 6, 2020: Join us for Community Connections: Dr. Dowling
June 26, 2020: Sad News in ASPIRO Trial
June 24, 2020: Join us for Community Connections: Dynacure
May 30, 2020: We're All In This Together
May 3, 2020: Mother's Day Happy Hour; "I Stay Home For Rare"
April 10, 2020: First Virtual Connection in Review
April 2, 2020: MTM-CNM "Virtual" Connection
2019
November 28, 2019: Giving Thanks Slideshow
September 18, 2019: What a Group!
June 3, 2019: Conference Theme and Registration
April 23, 2019: The Conference Is Coming!
February 26, 2019: Rare Disease Day, Advocacy, Travel Grants & Education
2018
November 26, 2018: Announcement of the 2019 MTM-CNM Family Conference
2017
November 22, 2017: Happy Thanksgiving
September 13, 2017: Stay Strong, Stay Connected
August 13, 2017: Highlights from 2017 MTM-CNM Family Conference #Nashville2017
July 16, 2017: The inside scoop on Nashville
July 15, 2017: Conference Agenda
June 30, 2017: Reminders, upcoming deadlines
June 24, 2017: More Research Opportunities at the Conference
June 12, 2017: Participate in Research at the Conference
June 5, 2017: Travel Grants, Rare Bears
May 30, 2017: Testimonial from Dr. Smith, Upcoming Reminders
May 24, 2017: Get Your Boots On!
May 16, 2017: Registration is open for Nashville 2017
May 10, 2017: Remembering and Honoring; Family Fundraising
April 8, 2017: Together. We make it happen.
March 16, 2017: AmazonSmile, NORD Advocacy, Lucky
February 22, 2017: Do you care about Rare? Be a part of something great!
January 16, 2017: Announcing the 2017 Conference Venue - book your rooms!
2016
December 15, 2016: LuLaRoe Fundraiser!
November 29, 2016: Giving Tuesday
October 31, 2016: Happy Halloween, Pre-Conference Survey, Crowdrise
September 14, 2016: We're Heading to Nashville in 2017!
July 25, 2016: Looking back... And Planning Ahead
February 13, 2016: Do you love someone rare?
2015
November 26, 2015: Myo, Jackie, Thankfulness
August 27, 2015: Conference Program, Videos, News
August 13, 2015: Connections Continue!
July 14, 2015: Two Weeks to Go!
July 8, 2015: Conference Speakers and Events!
June 27, 2015: University of Florida Longitudinal Respiratory Study
June 21, 2015: Father's Day messages
June 18, 2015: Audentes & Nationwide Hospital assessment of physical function
May 25, 2015: Registration is Live!
May 16, 2015: "Anchors & Oars"; Audentes Photos; Family Fundraising
March 14, 2015: "My First Conference Experience"; Reflection Room
February 27, 2015: Rare Disease Day Events; Remembering Benjamin
January 29, 2015: "Show Some Love: A Little Goes A Long Way"
2014
December 15, 2014: Happy Holidays from MTM-CNM Family Connection
December 1, 2014: Gene Replacement Therapy Clinical Trials Q&A
November 27, 2014: Happy Thanksgiving; RYR1 Foundation; Fundraising
November 20, 2014: Meet Reese; "31" Fundraiser
November 1, 2014: Join the MTM-CNM Thankfulness Initiative
October 26, 2014: Halloween Fundraising
September 28, 2014: Announcing the 2015 Conference!
September 16, 2014: Parent Advisory Board for Audentes
August 15, 2014: Announcing MTM-CNM Family Connection, Inc!
May 11, 2014: Happy Mother's Day; Participate in Current Research Studies
February 27, 2014: Rare Disease Day; Research Breakthrough in France
January 31, 2014: The Journey to Clinical Trials
2013
December 24, 2013: Happy Holidays; Remembering Matteo
November 27, 2013: Happy Thanksgiving; 3 Important Registries
September 29, 2013: New Videos (Valerion, Audentes) from the 2013 Conference
September 1, 2013: Family Introductions video from the 2013 Conference
August 28, 2013: Conference Memories
August 9, 2013: We Did It! 2013 Conference Summary
July 16, 2013: Almost There! 2013 Pre-Conference Details
July 10, 2013: University of Michigan research team
June 21, 2013: University of Florida research team
May 25, 2013: Memorial Day; Remembering our MTM/CNM Angels
May 12, 2013: Mother's Day; Speaker's Spotlight: Sabine de Chastonay; Family Fundraising
March 29, 2013: Speaker's Spotlight: Dr. Childers; Collaboration and Fundraising
February 25, 2013: Conference Registration 2013; Zazzle Store
January 20, 2013: Let's Make This Happen! Our Mission; Fundraising
2012
October 18, 2012: Announcing the 2013 Conference!
July 29, 2012: Planning Update for 2013
June 16, 2012: Happy Father's Day
2011 and older
coming sooner or later...
July 15, 2023: New Liver Questions in the MTM-CNM Registry
April 19, 2023: In Memory of Reid
April 6, 2023: Register for Liver Webinar
February 7, 2023: AGT Webinar, Family Fundraising, Treasured Kids Foundation, Clinical Trials and the Patient Voice
2021
November 18, 2021: For Will
October 14, 2021: Registration for Dynacure Webinar
July 26, 2021: Externally-Led PFDD Registration
June 25, 2021: PFDD Preparations
June 2, 2021: Save the Date: Externally-Led PFDD
May 20, 2021: Patient Engagement & Advocacy in Drug & Therapy Development
2020
December 25, 2020: Christmas Comfort and Joy
November 23, 2020: MTM-CNM Family and Friendsgiving
July 31, 2020: EveryLife Survey and Scholarship; Dynacure News; Dowling Replay
July 11, 2020: Dynacure Replay, Dowling Reminder, EveryLife Survey
July 6, 2020: Join us for Community Connections: Dr. Dowling
June 26, 2020: Sad News in ASPIRO Trial
June 24, 2020: Join us for Community Connections: Dynacure
May 30, 2020: We're All In This Together
May 3, 2020: Mother's Day Happy Hour; "I Stay Home For Rare"
April 10, 2020: First Virtual Connection in Review
April 2, 2020: MTM-CNM "Virtual" Connection
2019
November 28, 2019: Giving Thanks Slideshow
September 18, 2019: What a Group!
June 3, 2019: Conference Theme and Registration
April 23, 2019: The Conference Is Coming!
February 26, 2019: Rare Disease Day, Advocacy, Travel Grants & Education
2018
November 26, 2018: Announcement of the 2019 MTM-CNM Family Conference
2017
November 22, 2017: Happy Thanksgiving
September 13, 2017: Stay Strong, Stay Connected
August 13, 2017: Highlights from 2017 MTM-CNM Family Conference #Nashville2017
July 16, 2017: The inside scoop on Nashville
July 15, 2017: Conference Agenda
June 30, 2017: Reminders, upcoming deadlines
June 24, 2017: More Research Opportunities at the Conference
June 12, 2017: Participate in Research at the Conference
June 5, 2017: Travel Grants, Rare Bears
May 30, 2017: Testimonial from Dr. Smith, Upcoming Reminders
May 24, 2017: Get Your Boots On!
May 16, 2017: Registration is open for Nashville 2017
May 10, 2017: Remembering and Honoring; Family Fundraising
April 8, 2017: Together. We make it happen.
March 16, 2017: AmazonSmile, NORD Advocacy, Lucky
February 22, 2017: Do you care about Rare? Be a part of something great!
January 16, 2017: Announcing the 2017 Conference Venue - book your rooms!
2016
December 15, 2016: LuLaRoe Fundraiser!
November 29, 2016: Giving Tuesday
October 31, 2016: Happy Halloween, Pre-Conference Survey, Crowdrise
September 14, 2016: We're Heading to Nashville in 2017!
July 25, 2016: Looking back... And Planning Ahead
February 13, 2016: Do you love someone rare?
2015
November 26, 2015: Myo, Jackie, Thankfulness
August 27, 2015: Conference Program, Videos, News
August 13, 2015: Connections Continue!
July 14, 2015: Two Weeks to Go!
July 8, 2015: Conference Speakers and Events!
June 27, 2015: University of Florida Longitudinal Respiratory Study
June 21, 2015: Father's Day messages
June 18, 2015: Audentes & Nationwide Hospital assessment of physical function
May 25, 2015: Registration is Live!
May 16, 2015: "Anchors & Oars"; Audentes Photos; Family Fundraising
March 14, 2015: "My First Conference Experience"; Reflection Room
February 27, 2015: Rare Disease Day Events; Remembering Benjamin
January 29, 2015: "Show Some Love: A Little Goes A Long Way"
2014
December 15, 2014: Happy Holidays from MTM-CNM Family Connection
December 1, 2014: Gene Replacement Therapy Clinical Trials Q&A
November 27, 2014: Happy Thanksgiving; RYR1 Foundation; Fundraising
November 20, 2014: Meet Reese; "31" Fundraiser
November 1, 2014: Join the MTM-CNM Thankfulness Initiative
October 26, 2014: Halloween Fundraising
September 28, 2014: Announcing the 2015 Conference!
September 16, 2014: Parent Advisory Board for Audentes
August 15, 2014: Announcing MTM-CNM Family Connection, Inc!
May 11, 2014: Happy Mother's Day; Participate in Current Research Studies
February 27, 2014: Rare Disease Day; Research Breakthrough in France
January 31, 2014: The Journey to Clinical Trials
2013
December 24, 2013: Happy Holidays; Remembering Matteo
November 27, 2013: Happy Thanksgiving; 3 Important Registries
September 29, 2013: New Videos (Valerion, Audentes) from the 2013 Conference
September 1, 2013: Family Introductions video from the 2013 Conference
August 28, 2013: Conference Memories
August 9, 2013: We Did It! 2013 Conference Summary
July 16, 2013: Almost There! 2013 Pre-Conference Details
July 10, 2013: University of Michigan research team
June 21, 2013: University of Florida research team
May 25, 2013: Memorial Day; Remembering our MTM/CNM Angels
May 12, 2013: Mother's Day; Speaker's Spotlight: Sabine de Chastonay; Family Fundraising
March 29, 2013: Speaker's Spotlight: Dr. Childers; Collaboration and Fundraising
February 25, 2013: Conference Registration 2013; Zazzle Store
January 20, 2013: Let's Make This Happen! Our Mission; Fundraising
2012
October 18, 2012: Announcing the 2013 Conference!
July 29, 2012: Planning Update for 2013
June 16, 2012: Happy Father's Day
2011 and older
coming sooner or later...
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