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Webinars

2023 Webinars

April 22, 2023: Community Conversations: Liver Issues in MTM & CNM.  Watch on YouTube.
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Following this webinar, the MTM-CNM Liver Collaborative Working Group developed a "one-pager" document that summarizes the current understanding of "Liver Considerations for Myotubular & Centronuclear Myopathy".  It is recommended to share this document with your/your child's doctors as part of ongoing care-related discussions. 
​Click the document image to download a pdf.


February 11, 2023: Community Conversations: Astellas Gene Therapies share an update on AT132 Gene Therapy for X-Linked Myotubular Myopathy.  Watch on YouTube.
Astellas Gene Therapies provided written responses to questions that were asked during the webinar but were not able to be responded to live due to time.  The Q & A file can be found here:
Post-Webinar Additional Q&A
File Size: 659 kb
File Type: pdf
Download File

2021 Webinars

May 22, 2021: Community Conversations: Patient Engagement & Advocacy in Drug & Therapy Development.  Watch on YouTube.

2020 Webinars

July 13, 2020: Community Conversations: Tamoxifen for MTM.  Watch on YouTube.
June 29, 2020: Community Conversations: Dynacure.  Watch on YouTube.
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  • Home
  • About
    • About MTM/CNM
    • About Us
    • Contact
    • Newsletters
    • Traveling Turtle
  • Family Conference
    • 2019
    • Previous Conferences >
      • 2017
      • 2015
      • 2013
      • 2011
      • 2009
  • Resources
    • Community Resources
    • Webinars
  • Research
    • Research Studies
    • Drug Approval Overview
    • Selected Publications
  • Fundraising
  • Blog