In September, Erin and Marie (and Myo!) traveled to San Diego for the 2019 RARE Patient Advocacy Summit put on by Global Genes. We represented our MTM-CNM community and gave a Poster Presentation entitled "Power of Patient-Professional Collaborative Conferences", sharing some unique features of our Conference model, and helping to inspire others interested in similar collaborative efforts. Put simply, our conference is not just about families or just about research. It is about bringing all together - families, researchers, medical professionals, pharma industry - and creating an experience that is truly greater than the sum of its parts and moves our community forward together. Check out the poster below!
MTM-CNM Family Connection's Blog
Sharing information, resources, updates, and thoughts on various topics of interest to the MTM-CNM community.